WDPCHS Newsletter - June 2019

. Posted in World Databse for Pediatric and Congenital Heart SurgeryHits: 539

In this issue

  1. Message from the Database
  2. Participating Hospitals
  3. Web Based Data Entry Updates
  4. Database Participating Centers
  5. Changes in Data Quality (DQ) Process
  6. Upcoming Database Presentations and Booths
  7. Surgery Counts and Collective Counts
  8. Learn More!
  9. How to Enroll!
  10. Contact Us 

 Message from the Database


This is the inaugural newsletter of the World Database for Pediatric and Congenital Heart Surgery (WDPCHS). This newsletter will be distributed quarterly with updates to the database. Entering the third year of the World Database, 61 hospitals are now enrolled representing 20 countries with a collective 19,435 surgeries entered. We are happy to report that one-year follow up status is known for 67 percent of our patients. Enthusiasm for the database continues to grow and centers are enrolling rapidly.
 
Sincerely,
James K. Kirklin, Database Chair
James D. St. Louis, Database Vice Chair/Secretary
Marcelo B. Jatene, WSPCHS President
Christo I. Tchervenkov, WSPCHS Executive Director
 

 Participating Hospitals

wdpchs map of participation

 

 Web Based Data Entry Updates

Since the launch of the World Database, four updates have been released to the system. The development team is working to continue to enhance the data entry site. We welcome all feedback and suggestions from sites and review these regularly with the database team for updates to the system. 

The first major revision to the web based data entry system is in progress and will be available soon. An announcement will be made when the revision goes live and the updated forms and form manual will be available on the website. Plans for upcoming revisions include:

  • Expanded and revised list of diagnoses for Tier 1 and Tier 2 patients
  • Expanded and revised list of procedures for Tier 1 and Tier 2 patients
  • Ability to submit batch data from Chinese hospitals
  • Ability to translate the database into other languages
  • Addition of six month follow up form
  • Revisions to one year follow up form
  • Post-Operative Events form is changing its name to be the ‘Discharge/90 days form’

 

 Database Participating Centers

We would like to welcome all centers participating in the World Database. During the inaugural year of data collection in 2017, 24 hospitals enrolled representing 17 countries. Sixty-one hospitals representing 20 countries are now participating in the database. A complete list of participating hospitals is available on the World Database website; Participating hospitals
 

 Changes in Data Quality (DQ) Process

Currently, sites receive a monthly DQ report that lists patients at their site identified by various data integrity checks and lists all surgeries entered and occurring during the report period. These reports are uploaded to the web based data entry system for sites to review and sign off on each month. The database will be changing the way data integrity checks are done by implementing a ‘sticky note messaging system’. Data inconsistencies identified will be flagged with a sticky note and a notification will be sent to the user to verify the data. The user will then be able to make the correction directly on the form and/or reply to the sticky note that the data have been verified.

Additionally, users will be able to view a count of how many surgeries were entered during each month and have the ability to verify this surgery count directly in the database. 
 

 Upcoming Database Presentations and Booths

The World Database leadership will continue to travel the globe in 2019 to continue to help insure increased growth and interest in the database. A complete list of upcoming presentations is available on the World Database website; Upcoming Presentations
 

Date Location Conference
2018 Database Presentations
February Vizag, India 64th Annual Conference of Indian Association of Cardiovascular and Thoracic Surgery
March Riyadh, Saudi Arabia 29th Annual Conference of the Saudi Heart Association
April Cairo, Egypt 4th International Conference of Pediatric Cardiology
April Daejeon, Korea The Korean Society of Cardiology
July Kanagawa, Japan Japanese Society of Pediatric Cardiology and Cardiac Surgery
July Orlando, Florida 6th Scientific Meeting of the WSPCHS
September Ahmedabad, India PCSI
September Puebla, Mexico National AMECC (Asociación Mexicana de Especialistas en Cardiopatías Congénitas)
October Atlanta, Georgia The 2018 Multi-Societal Database Committee for Pediatric and Congenital Heart Disease Meeting
October Chicago, Illinois Congenital Heart Surgeons Society (CHSS)
November Maceió, Brazil Brazilian Congress of Pediatric Cardiology and Cardiac Surgery
2019 Database Presentations
February Busan, South Korea Annual Meeting of the Korean Congenital Heart Surgeons Association
February Huntington Beach, California 22nd Annual Update on Pediatric and Congenital Cardiovascular Disease
March Haikou, China Second Annual Chinese National Database Symposium
March Shanghai, China Grand Rounds Shanghai Children’s Medical Center

In November 2019, the World Society will host the seventh Scientific Meeting of the WSPCHS. The conference will be held November 28-29th, 2019 in Bali, Indonesia, Asia. The Database will host the 4th World Database Symposium. Database presentations will include:
  • Establishment of the Chinese National Congenital Heart Surgery Database
  • Success of One-year follow-up on benchmark cases
  • First revision of the collection data forms
  • Cooperation with existing NGO group
  • Report form the Database Taskforce

 Surgery Counts and Collective Counts 

Tier 1 Surgeries: index surgeries with expanded data collection including surgery details, discharge, one year follow up, patient death

Tier 2 Surgeries: All other surgeries with minimal data collection 

Surgery submission as of June 2019

  • 9,375   Tier 1 surgeries
  • 7,064   Tier 2 surgeries
  • 3,123   Total surgeries submitted batched submission
  • 19,562 Total surgeries 

 Learn More!

Interested in learning more about enrolling your hospital in the World Database, click the link below and complete the form. A database representative will reach out to you with additional information: http://www.uab.edu/medicine/wdpchs/learnmore
 

 How can I enroll my hospital?

  • Sign and return the WSPCHS Data Use Agreement and Participation Agreement.
  • At least one member of the institution should be a member in good standing of the WSPCHS.

 Contact Us


James K. Kirklin, MD 
DCC Director / Database Chair
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James St. Louis, MD
Database Vice Chair / Secretary
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Current Database Sponsors

UAB KIRSO Childrens Mercy Hospital logo 300x69
ChildrensNationalMedicalCentre Logo 300x62 MCHfoundation 375x58