WDPCHS Newsletter - December 2022

. Posted in World Databse for Pediatric and Congenital Heart SurgeryHits: 145

Message from the Database

We would like to first extend a ‘Thank You’ to all the members of the World Database for Pediatric Congenital Heart Surgery (WDPCHS) for your continued efforts and hard work in this important international project. The past two years have seen incredible resilience from our organization through some of the most challenging times.  Each year we take this opportunity to present our participation update for the World Database. In 2022, we have recruited three new centers including institutions in Chile, Egypt and Thailand. At this time over 20,000 tier 1 surgeries and over 17,000 tier 2 surgeries have been entered from all 70 participating World Database institutions.  Thank you to all the site coordinators and World Database members for your active participation in the database. We continue to be encouraged by your increasing contributions, and hope this inspires more participation. Please let us know how we can assist you better by writing to us at This email address is being protected from spambots. You need JavaScript enabled to view it..  We look forward to hearing from you. We will continue to make enhancements to the web based data entry system in 2023 and we welcome all feedback and suggestions. 

Sincerely, 
James D. St. Louis, Database Chair/Secretary
James K. Kirklin, WSPCHS President
Christo I. Tchervenkov, WSPCHS Executive Director

The Word Database Committee 2021-2022

The World Database Committee includes a group of individuals that have dedicated their time and effort to the mission of the World Database, both in action and submission of patients. The agenda of the committee, through conference calls and sessions held at WSPCHS meetings, will address and provide input into current database issues. The committee will continue to  provide insight into future directions of the database. With increase in the number of requests for data and the analysis for this data for specific QI projects, the committee will also serve to review and approve such projects. Our plan will be to begin virtual committee meetings early in 2023. As we move into 2023, we hope this group will assist in defining the future direction of the database, with the ongoing evolution of what is provided to our participants and advance the care of our patients.

 

James St. Louis
Chairman: (WDPCHS)
Augusta, GA

James Kirklin
(President: WSPCHD)
Birmingham, AL

Christo Tchervenkov
(Executive Director WSPCHS)
Montreal, Canada

Erle Austin
Louisville, KY
                                                                              
Kirsten Finucane
Auckland, Zealand

Krishna Iyer
New Delhi, India                                                                      

Budi Rahmat
Djakarta, Indonesia

Shou Jun Lee
Beijing, China

Yastake Hirata
Shizuoka City, Japan

Cheul Lee
Seoul, Korea 
Nestor Sandoval
Bogota, Columbia

Jorge Cerventes
Mexico City, Mexico

B R Jagannath
Hyderabad, India

Aseem Srivastava
New Delhi, India

Sivakumar Sivalingam
Kuala Lumpur, Malaysia

Hafil Abdulgani
Djakarta, Indonesia

Luis F. Caneo
Sao Paulo, Brazil

Marcelo B. Jatene
Sao Paulo, Brazil

Hao Zhang
Shanghi, China

Nguyen Ly Thinh Truong
Hanoi, Vietnam

Brian Bateson
Louisville, KY

Ignacio Juaneda
Cordoba, Argentina 

 

Web Based Data Entry Updates-Version 1.0.9 (July 1, 2022)

The most recent revision is now live in the web based data entry system, and the updated forms, form manual, and appendices are available on the website; Data Collection forms.

There were two minor database revisions since our last (March 2020) newsletter.  Version 1.0.8 released July 21, 2020 saw to two bug corrections and one new feature: 

  • Bug Fixes
    • Within the Institutional Practice Details (IPD) Form questions 15 (Does your hospital have an Electronic Medical Records System?) and 16 (Does your hospital participate in a National Congenital Heart Surgery Database?) each have sub-question text boxes (15a:  Software Vendor) (16a:  Enter Name of Database) that now properly appear if yes is chosen in question 15 or 16
    • Date validation for patient date of birth was updated so that it triggers both via “Patient Search” function and adding a new Surgery Form
  • New Feature
    • Introduced data submission from U.S. hospitals participating in the Congenital Heart Surgeons’ Society Quality Assurance (CHSS QA)!

 
The second, version 1.0.9 released July 1, 2022 to address various bugs and implement a heavily requested new feature.

  • Bug Fixes
    • Harvest File Upload Status – CHSS users will see all uploads, not just successful uploads
    • Local Hospital Patient ID – very long IDs were causing application errors on form submission
    • Surgery Form date of birth – validation was causing inappropriate date validation popups
    • Death Form death date – validation failing to prevent death forms dated prior to Tier 1 surgery date
    • Add Surgery Form – was returning incorrect search results when a user searched using multiple criteria (i.e. last name = “Smith” and gender = “Female”)
  • New Feature
    • Form Data Download:  Sites can retrieve all data entered by the site via the WDPCHS Application in either excel “.xlsx” or comma separated value “.csv” file formats by form (i.e. Tier 1 Surgery, T2 Surgery, Follow-up, Death) and reflect up-to-the-minute data entry changes.

 
The WDPCHS KIRSO team are finalizing items to be included in release 1.0.10.  In consideration for this version are text changes for CHSS 6 month and 1 year Follow-up Forms, updates to the previous cardiac surgeries section, and other.

 

Bi-Annual Reports

The Bi-Annual reports have now transitioned from their current layout to a unique and user-friendly approach that has updated graphs and charts in addition to the tabular exhibits.
 
Additionally, we have begun the work to create a more modern and usable reporting platform that will provide an interactive way of looking at your data in real time.  This new reporting system will provide a mechanism for you to compare your center against the aggregate in multiple ways, including advanced visualizations such as dual-axis line graphs, bubble charts, and others.  Here are some samples of enhancements distributed in the last reports.

 

report 1 dec2022reports 2 dec2022

Presentations from 2020-2022

February 2020 Ho Chi Minh City, Vietnam 1St Annual Vietnamese
Congenital Heart Surgery
Database Symposium
The World Database for Pediatric and Congenital Heart Surgery: An
Overview       
February
2020
Ho Chi Minh City, Vietnam 1St Annual Vietnamese
Congenital Heart Surgery
Database Symposium
Creation of a National Congenital Heart Surgery Database:  How and Why
February
2020
Ho Chi Minh
City, Vietnam
1St Annual Vietnamese
Congenital Heart Surgery
Database Symposium
The Benefits of an Internationally Linked National Congenital Heart Surgery            
December
2020
Kuala Lumpur, Malaysia (Virtual) Second Annual National Cardiovascular and Thoracic Surgical Database (NCTSD)
Registry Congenital Heart
Surgery
The Importance of Linking a National
Congenital Heart Surgery Databases
To an International Platform of
 
March
2021
Augusta,
Georgia (Virtual)
Moretz Surgical Society
Teams Virtual Conference
 Linkage of National Databases to
Assess Global Outcomes in Pediatric
And Congenital Heart Surgery: Mission and Activities of the World Database for Pediatric and Congenital Heart Surgery (WDPCHS).
April
2021
Montreal,
QC
(Virtual)
13th Annual David R. Murphy
Visiting Professorship Day
At the MCH “Linkage of
National Databases to
Assess Global Outcomes
In Pediatric and Congenital
Heart Surgery
Mission and Activities of the World Database for Pediatric and Congenital
Heart Surgery (WDPCHS).
June
2021
Kuala Lumpur, Malaysia (Virtual) Malaysian Association of
Thoracic and Cardiovascular
Surgery
Role of Databases in Quality
Improvement and Patient Safety:
Lesion from the STS and World
Database for Pediatric and Congenital
Heart Surgery (WDPCHS).
March
2022
Bangkok,
Thailand
(Virtual)
Annual Scientific Meeting of
The Thai Society of Pediatric
And Congenital Heart
Surgeons (TSPCHS).
World Database for Pediatric and
Congenital Heart Surgery. History
And Importance to a Global Effort.
June
2022
Marrakesh,
Morocco
7th Meeting of World Society
For Pediatric and Congenital
Heart Surgery, 1st Meeting of
The African Society for
Pediatric and Congenital
Heart Surgery.
The World Database for Pediatric
And Congenital Heart Surgery
5-year Report.
June
2022
Marrakesh,
Morocco
7th Meeting of World Society
For Pediatric and Congenital
Heart Surgery, 1st Meeting of
The African Society for
Pediatric and Congenital
Heart Surgery.
5th Symposium of The World
Database for Pediatric and Congenital
Heart Surgery Focus on Africa. 

Publications


St Louis, J. D., Deng, L., Covington, C., Timkovich, N. A., Crethers, D., Collum, C. S., Pennington, J. K., Broser, T., Dabal, R. J., Jacobs, J. P., O’Brien, J. E., Austin, E. H., Tchervenkov, C. I., & Kirklin, J. K. (2022). The World Society for Pediatric and Congenital Heart Surgery: 2021 Update of the World Database for Pediatric and Congenital Heart Surgery. World Journal for Pediatric and Congenital Heart Surgery, 13(2), 137–145. https://doi.org/10.1177/21501351221075604

Surgery Counts and Collective Counts

Tier 1 Surgeries: index surgeries with expanded data collection including surgery details, discharge, one year follow up, patient death

Tier 2 Surgeries: All other surgeries with minimal data collection 

Surgery submission as of December 2022
•    20,758 Tier 1 surgeries
•    17695 Tier 2 surgeries
•    3,123   Total surgeries submitted batched submission
•    38,453Total surgeries

Interested in learning more about enrolling your hospital in the World Database, click the link below and complete the form. A database representative will reach out to you with additional information:
(http://www.uab.edu/medicine/wdpchs/learnmore)

How can I enroll my hospital?

  • Sign and return the WSPCHS Data Use Agreement and Participation Agreement.
  • At least one member of the institution should be a member in good standing of the WSPCHS.

Contact Us

James K. Kirklin, MD 
DCC Director / Database Chair
This email address is being protected from spambots. You need JavaScript enabled to view it.

James St. Louis, MD
Database Vice Chair / Secretary
This email address is being protected from spambots. You need JavaScript enabled to view it.

Jeanne Anne Love
DCC Administrator
This email address is being protected from spambots. You need JavaScript enabled to view it.

Patricia Potter
DCC Patient Coordinator
This email address is being protected from spambots. You need JavaScript enabled to view it.

World Database Sponsors

Current Database Sponsors

UAB KIRSO Childrens Mercy Hospital logo 300x69
ChildrensNationalMedicalCentre Logo 300x62 

MCHfoundation logo 200x126

 

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